Nick in RaChaCha Posted January 24, 2006 Share Posted January 24, 2006 MRI results came in yesterday. The doctors found anouth cancerous tumor at the base of Mera's spine. There are no plans to operate on that tumor at this point However the Doctors are saying positive things. The plan for the time being is to keep Mera in Syracuse Hospital for probably a couple of weeks. She is still on the respirator but is responding. She squeezed her mom's hand when she talked to her. She will have surgery to put a shunt in and then they will be able to take her off respirator. She will get chemo for about 8-9 mos. They will be able to do some of this from home. She will probably be in and out of the hospital. The family is very hopeful that they can get Mera in an international study with a Dr. John Finley from LA Children's Hospital who specializes in this type of cancer. This means they will have all the state of the art available to them. Sounds like they will all have a long road ahead of them. We will see what we can do for them when we find out more about what their specific needs are. To my friends at TBD thanks for the support! Please keep the prayers coming. Link to comment Share on other sites More sharing options...
cåblelady Posted January 24, 2006 Share Posted January 24, 2006 Please keep the prayers coming. 581422[/snapback] You got them, Nick. Link to comment Share on other sites More sharing options...
Thailog80 Posted January 24, 2006 Share Posted January 24, 2006 Very positive news. Prayers to all of you. Inquire into the Ronald McDonald house in that area. They will help the family out with a room or whatever othr expenses they may incure. Why not Sloan Kettering in NYC? Link to comment Share on other sites More sharing options...
Nick in RaChaCha Posted January 24, 2006 Author Share Posted January 24, 2006 Very positive news. Prayers to all of you. Inquire into the Ronald McDonald house in that area. They will help the family out with a room or whatever othr expenses they may incure. Why not Sloan Kettering in NYC? 581424[/snapback] The doctors are talking about Kettering. I think they want Mera to get a little bit stronger before they move her. Can you imagine Brain surgery on Monday and possible spinal surgery on Friday Link to comment Share on other sites More sharing options...
Thailog80 Posted January 24, 2006 Share Posted January 24, 2006 The doctors are talking about Kettering. I think they want Mera to get a little bit stronger before they move her. Can you imagine Brain surgery on Monday and possible spinal surgery on Friday 581430[/snapback] She's a tough little girl. Link to comment Share on other sites More sharing options...
eball Posted January 24, 2006 Share Posted January 24, 2006 That is way too much for ANY person to go through, much less such a little girl. She must have an incredible spirit. Keep fighting! Link to comment Share on other sites More sharing options...
Beerball Posted January 24, 2006 Share Posted January 24, 2006 She's in our thoughts and prayers Nick, along with her entire family. I don't have the words to explain my feelings beyond that, but remember, miracles happen every day. Link to comment Share on other sites More sharing options...
The Dean Posted January 24, 2006 Share Posted January 24, 2006 Thanks, Nick. That's very encouraging. The hand squeeze must have been the best hand squeeze ever. We'll keep our end up here...that you can count on. Link to comment Share on other sites More sharing options...
wnyguy Posted January 24, 2006 Share Posted January 24, 2006 That poor little one. My prayers will be for her. Link to comment Share on other sites More sharing options...
Puhonix Posted January 24, 2006 Share Posted January 24, 2006 Man, this is the worse thing to read through, and I'm not even involved, I can only imagine what the parents are going through. I know I'd just fall apart. I'm keeping Mera in my heart, let God guide her through this. Link to comment Share on other sites More sharing options...
cåblelady Posted January 25, 2006 Share Posted January 25, 2006 ~bump~ for Mera. Link to comment Share on other sites More sharing options...
MadBuffaloDisease Posted January 25, 2006 Share Posted January 25, 2006 We'll keep pulling for her. Link to comment Share on other sites More sharing options...
mead107 Posted January 25, 2006 Share Posted January 25, 2006 nick , sound like you all have some good news hope everything works out .prayers for Mera and the family and you . Link to comment Share on other sites More sharing options...
Dwight Drane Posted January 26, 2006 Share Posted January 26, 2006 Hang in there. Everyone can take a cue from how tough she is. If it hasn't already, the family's adrenaline is going to kick in to a "get it done" mode. She's leading the way by toughing it out. If anyone close to the situation is sane enough to focus, do your research on the internet. It sounds like she's headed to some of the best care around, but have a basic knowlede, if not in depth knowledge of options before going into meetings with doctors. It should help you feel a firmer grasp of the situation, and not leave everyone to feeling chaotic. Best wishes and prayers Link to comment Share on other sites More sharing options...
BILLS4LIFE Posted January 26, 2006 Share Posted January 26, 2006 More prayers coming. Link to comment Share on other sites More sharing options...
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