Joe Ferguson forever Posted September 14, 2023 Share Posted September 14, 2023 I’ve got it. Recently discovered. And I chose a nasal “pillow” mask- my ass! Every time I open my mouth, there’s a loud and enwaking rush of air. Must be some CPAP folks here. What mask next? My sister in law said I looked like the guy from “silence of the Lambs” in the pillow one…. Quote Link to comment Share on other sites More sharing options...
Gugny Posted September 14, 2023 Share Posted September 14, 2023 (edited) 6 hours ago, Joe Ferguson forever said: I’ve got it. Recently discovered. And I chose a nasal “pillow” mask- my ass! Every time I open my mouth, there’s a loud and enwaking rush of air. Must be some CPAP folks here. What mask next? My sister in law said I looked like the guy from “silence of the Lambs” in the pillow one…. I have a ResMed AirSense 10 Autoset. It’s the full mask, which I’m guessing is what you’re calling a “pillow.” I have no problems with it at all - other than it’s a minor pain in the ass to travel with. I find mine to be incredibly quiet. But I am not a light sleeper. If you’re an open-mouth sleeper, there is no getting around a full mask. The only other option that I know of is Inspire, which requires surgery to install into your body. Edited September 14, 2023 by Gugny 1 Quote Link to comment Share on other sites More sharing options...
teef Posted September 14, 2023 Share Posted September 14, 2023 do you know what your level of severity of the apnea is, (mild, moderate, severe)? if it's more on the mild to moderate side, you may be able to wear an appliance as opposed to a cpap. i know a couple of people who have the inspire like gug mentioned, but i think you have to go through a number of steps before it's covered. i think they have to see that you've used the cpap with no improvement, but i could be wrong on that. Quote Link to comment Share on other sites More sharing options...
Wacka Posted September 14, 2023 Share Posted September 14, 2023 Jff (red), Lose some weight. Couple of years ado, would be waking up every hour. Especially during hay fever season (now). Now I make sure I take a ned religiously ( Walgreens version of Allegra. Also lost about 20 lbs in the last year. Now go to bed at 12-1, wake to pee at 3-4 and then get up t 7-8. I expect the pit stop at 3-4 as I am retired. Also you say you are a retired doc, why are you asking us? you must know some ENTs that have more knowledge than we do. 1 1 Quote Link to comment Share on other sites More sharing options...
teef Posted September 14, 2023 Share Posted September 14, 2023 i just saw someone we made an appliance for as a follow up, and he let me know that he woke up 10 minutes before his alarm refreshed. he was also told his apnea was too severe to use anything but a cpap. i don't think the appliances take the place of the cpap, but it's a nice alternative to not wearing anything. 1 Quote Link to comment Share on other sites More sharing options...
Joe Ferguson forever Posted September 14, 2023 Author Share Posted September 14, 2023 (edited) 5 hours ago, teef said: do you know what your level of severity of the apnea is, (mild, moderate, severe)? if it's more on the mild to moderate side, you may be able to wear an appliance as opposed to a cpap. i know a couple of people who have the inspire like gug mentioned, but i think you have to go through a number of steps before it's covered. i think they have to see that you've used the cpap with no improvement, but i could be wrong on that. I have mild sleep apnea. I discussed both the inspire and the appliance with the sleep doc. Decided to try the CPAP. The nasal pillow is just a small soft plastic air reservoir with nasal prongs. Was the least bulky of the masks I was shown. Now, if I want to do the appliance, I'd have to pay 100% for it. So I Guess I'm going with the full mask next. I get 1 free alternative mask. Just wondering if there was a design that people especially liked. I like the hose attaching to the back of the head so that might limit the choices. After reading up, CPAP compliance is only 30-60%. Inspire involves an electrode to a major nerve and the diaphragm. Think I'll pass for now... 4 hours ago, Wacka said: Jff (red), Lose some weight. Couple of years ado, would be waking up every hour. Especially during hay fever season (now). Now I make sure I take a ned religiously ( Walgreens version of Allegra. Also lost about 20 lbs in the last year. Now go to bed at 12-1, wake to pee at 3-4 and then get up t 7-8. I expect the pit stop at 3-4 as I am retired. Also you say you are a retired doc, why are you asking us? you must know some ENTs that have more knowledge than we do. Yes, I'm working on weight loss too. But the tiredness slows me down a bit. Not seeing an ENT but a pulmonologist. btw, most but not all pts are overweight. My BMI is 28 so I am. Mask choices seem pretty random and unscientific. Edited September 14, 2023 by Joe Ferguson forever Quote Link to comment Share on other sites More sharing options...
The Poojer Posted September 14, 2023 Share Posted September 14, 2023 i have used a cpap for years, best thing i ever did. My sleep doctor is getting me in to a phase 3 double blind trial for a new medication that has potentially positive results. I start the trial next week, really looking forward to seeing how it plays out, but with my luck, i'll probably get the placebo 2 Quote Link to comment Share on other sites More sharing options...
Royale with Cheese Posted September 14, 2023 Share Posted September 14, 2023 I have mild sleep apnea and I sleep with a breath right nose strip every night. It has helped tremendously and I feel much better. I was tired a lot before. I can't do the mouth guard or CPAP...it's just too uncomfortable. Try the nose strips. I get extra strength because I'm a tough guy. https://www.amazon.com/Breathe-Right-Strips-Snoring-Drug-Free/dp/B002GU5YCG/ref=pd_lpo_sccl_1/140-4953164-2321232?pd_rd_w=fuZ6g&content-id=amzn1.sym.116f529c-aa4d-4763-b2b6-4d614ec7dc00&pf_rd_p=116f529c-aa4d-4763-b2b6-4d614ec7dc00&pf_rd_r=TV20NGAX3XFNXYABTR8E&pd_rd_wg=nkTAJ&pd_rd_r=f8140a6b-5ede-4270-a43e-7a0f5f410556&pd_rd_i=B002GU5YCG&psc=1 2 Quote Link to comment Share on other sites More sharing options...
Fleezoid Posted September 14, 2023 Share Posted September 14, 2023 I have it and I use the nose "pillows". As Gugny said, if you're an open-mouth sleeper, the pillows don't work. I used to be an open-mouth sleeper, but there was no way I was going full mask. So I trained myself to keep my dang mouth shut. 1 Quote Link to comment Share on other sites More sharing options...
teef Posted September 14, 2023 Share Posted September 14, 2023 12 minutes ago, Joe Ferguson forever said: I have mild sleep apnea. I discussed both the inspire and the appliance with the sleep doc. Decided to try the CPAP. The nasal pillow is just a small soft plastic air reservoir with nasal prongs. Was the least bulky of the masks I was shown. Now, if I want to do the appliance, I'd have to pay 100% for it. So I Guess I'm going with the full mask next. I get 1 free alternative mask. Just wondering if there was a design that people especially liked. I like the hose attaching to the back of the head so that might limit the choices. After reading up, CPAP compliance is only 30-60%. Inspire involves an electrode to a major nerve and the diaphragm. Think I'll pass for now... the nasal cannula which is sounds like you're using now tends to be the most comfortable for patients. i'm not sure how much you'll love the full mask. i've heard they're harder to sleep with and may require a special pillow depending how you sleep. are you sure you'd have to pay for the appliance? i know the machines can monitor use, so i thought if the patient had trouble, medical may pay for the alternative. my insurance person is out for the rest of the week, but i can ask. we have a lot that we make pushed through medical as long as there's a current sleep study, and as far as i know, this is with people who have tried the cpap. the devices are great for mild apnea. nothing on your face and you have full mobility at night. very comfortable and easy to make. i prefer the dream TAPS, but there are a number of choices with various costs. https://tapintosleep.com/products/tap-custom/ I think the ones i make are $500-600. Not cheap, but if there's no other alternative, they work well. 1 Quote Link to comment Share on other sites More sharing options...
Augie Posted September 14, 2023 Share Posted September 14, 2023 4 minutes ago, Fleezoid said: I have it and I use the nose "pillows". As Gugny said, if you're an open-mouth sleeper, the pillows don't work. I used to be an open-mouth sleeper, but there was no way I was going full mask. So I trained myself to keep my dang mouth shut. This is exactly me. I couldn’t stand the full mask and went to the nose pillows. It was the least awful option I could come up with. Just keep your mouth shut. I admit that I used to snore VERY badly. I would wake myself up at times. My wife would storm out in the middle of the night. On the CPAP that subsided, but I could only stand to wear it about 4 hours/night. Wife is early to bed and early to rise, so if I stayed up to about 1am, I could wear it until she got up about 5am. Now? IDK, but something has changed. I’ve lost some weight and learned to not sleep on my back much, and I just don’t snore the way I used to. Maybe I don’t drink as much as I used to as well? 🤷♂️ Alcohol feeds snoring! When we fly I HATE having an extra bag to take, but the wife insists. We went to Europe in the spring and I took it. There was no second hotel room in case I snored. I wore it as much as I could early on, but soon realized if I didn’t have it on I was getting no complaints. I haven’t worn it since. Oh, and if you are going to take a sleep study to get approved for insurance, I highly suggest you consume more than a doctors approved amount of alcohol that evening. I had VERY IMPRESSIVE sleep study results from my home test! 1 Quote Link to comment Share on other sites More sharing options...
Fleezoid Posted September 14, 2023 Share Posted September 14, 2023 31 minutes ago, Augie said: This is exactly me. I couldn’t stand the full mask and went to the nose pillows. It was the least awful option I could come up with. Just keep your mouth shut. I admit that I used to snore VERY badly. I would wake myself up at times. My wife would storm out in the middle of the night. On the CPAP that subsided, but I could only stand to wear it about 4 hours/night. Wife is early to bed and early to rise, so if I stayed up to about 1am, I could wear it until she got up about 5am. Now? IDK, but something has changed. I’ve lost some weight and learned to not sleep on my back much, and I just don’t snore the way I used to. Maybe I don’t drink as much as I used to as well? 🤷♂️ Alcohol feeds snoring! When we fly I HATE having an extra bag to take, but the wife insists. We went to Europe in the spring and I took it. There was no second hotel room in case I snored. I wore it as much as I could early on, but soon realized if I didn’t have it on I was getting no complaints. I haven’t worn it since. Oh, and if you are going to take a sleep study to get approved for insurance, I highly suggest you consume more than a doctors approved amount of alcohol that evening. I had VERY IMPRESSIVE sleep study results from my home test! Yeah, I rarely have the headgear on all night. I usually wake up in the middle of the night with the gear laying next to me. And sometimes I don't wear it at all. Particularly when I'm not very tired as it sometimes keeps me awake. Quote Link to comment Share on other sites More sharing options...
Joe Ferguson forever Posted September 14, 2023 Author Share Posted September 14, 2023 1 hour ago, teef said: the nasal cannula which is sounds like you're using now tends to be the most comfortable for patients. i'm not sure how much you'll love the full mask. i've heard they're harder to sleep with and may require a special pillow depending how you sleep. are you sure you'd have to pay for the appliance? i know the machines can monitor use, so i thought if the patient had trouble, medical may pay for the alternative. my insurance person is out for the rest of the week, but i can ask. we have a lot that we make pushed through medical as long as there's a current sleep study, and as far as i know, this is with people who have tried the cpap. the devices are great for mild apnea. nothing on your face and you have full mobility at night. very comfortable and easy to make. i prefer the dream TAPS, but there are a number of choices with various costs. https://tapintosleep.com/products/tap-custom/ I think the ones i make are $500-600. Not cheap, but if there's no other alternative, they work well. The NP who works in the sleep lab told me she checked with my insurer and they will pay for either cpap or appliance but not both. Still, If I can't tolerate the full mask, I'll try it. Probably the nasal strips first but I don't think my nose is the problem. the appliance works by pulling the mandible forward right? Is that unomfortable to most folks? Finally, I could get a chin strap for the nasal pillow....they're not requiring that mask back. Quote Link to comment Share on other sites More sharing options...
Ned Flanders Posted September 14, 2023 Share Posted September 14, 2023 Anybody try the Navage machine to help stop snoring? https://www.amazon.com/s?k=nose+cleaner+navage&hvadid=580580366073&hvdev=c&hvlocphy=9008123&hvnetw=g&hvqmt=e&hvrand=17176576349005125935&hvtargid=kwd-370172524213&hydadcr=21635_13322771&tag=googhydr-20&ref=pd_sl_925v7xa23a_e Quote Link to comment Share on other sites More sharing options...
Augie Posted September 14, 2023 Share Posted September 14, 2023 (edited) 25 minutes ago, Joe Ferguson forever said: The NP who works in the sleep lab told me she checked with my insurer and they will pay for either cpap or appliance but not both. Still, If I can't tolerate the full mask, I'll try it. Probably the nasal strips first but I don't think my nose is the problem. the appliance works by pulling the mandible forward right? Is that unomfortable to most folks? Finally, I could get a chin strap for the nasal pillow....they're not requiring that mask back. A buddy of mine LOVES his CPAP, even for quick naps. FAR different from me. But he did turn me on to these red chin straps that go over your head to help keep your mouth closed. That really seemed to help and it was far less annoying than the CPAP. It was a nice supplement. I’m not sure what the bold is about. I had the nasal pillows with a stretchy head gear, PLUS a separate chin strap. The head gear for the nasal pillows was enough to hold it in place for the most part. The chin strap was to help keep my mouth closed. . Edited September 14, 2023 by Augie 1 Quote Link to comment Share on other sites More sharing options...
ExiledInIllinois Posted September 14, 2023 Share Posted September 14, 2023 I am very VERY disappointed in this place... Over a dozen posts in and not one meme! 1 Quote Link to comment Share on other sites More sharing options...
Just Jack Posted September 14, 2023 Share Posted September 14, 2023 I've had mine almost two years now. Full face mask since I'm a mouth breather. Definitely noticed a difference once I started using it. 1 Quote Link to comment Share on other sites More sharing options...
stevestojan Posted September 14, 2023 Share Posted September 14, 2023 Had it. Quit drinking. Don’t have it anymore. I think this is mainly driven by the fact that I drinking was a lot and heavy DIPAs, and since quitting (haven’t had a drop in over two years) I dropped 60 lbs. I don’t know if weight is an issue for you, but my quality of sleep is insanely better since I quit the booze and lost weight. 1 3 Quote Link to comment Share on other sites More sharing options...
boater Posted September 14, 2023 Share Posted September 14, 2023 18 hours ago, Joe Ferguson forever said: I’ve got it. Recently discovered. And I chose a nasal “pillow” mask- my ass! Every time I open my mouth, there’s a loud and enwaking rush of air. Must be some CPAP folks here. What mask next? My sister in law said I looked like the guy from “silence of the Lambs” in the pillow one…. You chose the right mask. Any mask you choose will have the open mouth wind tunnel effect. The alternatives to the pillow mask are those full over the nose masks, which are cumbersome and make you look like a spastic fighter pilot---and you will still get the mouth wind tunnel effect. For what it's worth: they make a chin-strap type thingy that keeps your mouth closed. Me? I just learned to sleep with my mouth closed. 1 Quote Link to comment Share on other sites More sharing options...
Augie Posted September 14, 2023 Share Posted September 14, 2023 19 minutes ago, boater said: You chose the right mask. Any mask you choose will have the open mouth wind tunnel effect. The alternatives to the pillow mask are those full over the nose masks, which are cumbersome and make you look like a spastic fighter pilot---and you will still get the mouth wind tunnel effect. For what it's worth: they make a chin-strap type thingy that keeps your mouth closed. Me? I just learned to sleep with my mouth closed. Was Gorilla Glue involved? 😋 The strap helps, sleeping in another bedroom solves everything. Going back to that old thread, I do that some….and it works for us. To each their own. 1 Quote Link to comment Share on other sites More sharing options...
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