JÂy RÛßeÒ Posted February 15, 2019 Posted February 15, 2019 (edited) https://www.stbaldricks.org/participants/mypage/991167/2019 Sadly, beating childhood cancer isn't enough. I am raising funds for childhood cancer research in memory of Sweet Sally Sunshine - Sally Kabel. Sally was the daughter NYCBBB co-founder Matt Kabel, and she was diagnosed with ALL Leukemia with a MLL Translocation of her (4;11) chromosomes when she was just 10 months old. Over the next 2 years she endured treatments meant for adults in an effort to "cure" her rare and aggressive cancer. And those treatments worked. She beat it. The cancer was gone. But those adult treatments took a terrible toll on her young body. Her bones became brittle and she broke her leg 3 times while trying to learn to walk. Gastrointestinal complications forced installation of a feeding tube. Sleep apnea. Neuropathic pain. Developmental delays. Repeated bouts of pneumonia and other infections due to a weakened immune system. Worsening epileptic seizures. SO MANY hospitalizations. For 5 years this brave little girl and her amazing family fought the cancer and then the post-treatment complications. This all ended at 2:01pm on September 19th, 2018 (a week after her 6th birthday) when she passed away after her tired and battered body was overwhelmed by yet another infection. Sally was my hero. I went to her funeral and celebration of life, and saw for myself just how many people she touched and inspired during her short lifetime. And she continues to inspire me every day. And in July, the young son of another friend was also diagnosed with leukemia. The prayers begin again. And so I do what I can - raise funds for Pediatric Cancer Research via St. Baldrick's. Something must be done to develop treatments more appropriate for pediatric patients, so that we can reduce the trauma they themselves cause. Only 4% of current funding is earmarked toward pediatric cancer research. #ItsNotOK #MoreThanFour #SweetSallySunshine #BeLikeSally http://www.sweetsallysunshine.com/ https://teamnaaman.com/ Edited February 15, 2019 by JÂy RÛßeÒ
rockpile Posted February 16, 2019 Posted February 16, 2019 (edited) On 2/15/2019 at 12:34 PM, JÂy RÛßeÒ said: https://www.stbaldricks.org/participants/mypage/991167/2019 Sadly, beating childhood cancer isn't enough. I am raising funds for childhood cancer research in memory of Sweet Sally Sunshine - Sally Kabel. Sally was the daughter NYCBBB co-founder Matt Kabel, and she was diagnosed with ALL Leukemia with a MLL Translocation of her (4;11) chromosomes when she was just 10 months old. Over the next 2 years she endured treatments meant for adults in an effort to "cure" her rare and aggressive cancer. And those treatments worked. She beat it. The cancer was gone. But those adult treatments took a terrible toll on her young body. Her bones became brittle and she broke her leg 3 times while trying to learn to walk. Gastrointestinal complications forced installation of a feeding tube. Sleep apnea. Neuropathic pain. Developmental delays. Repeated bouts of pneumonia and other infections due to a weakened immune system. Worsening epileptic seizures. SO MANY hospitalizations. For 5 years this brave little girl and her amazing family fought the cancer and then the post-treatment complications. This all ended at 2:01pm on September 19th, 2018 (a week after her 6th birthday) when she passed away after her tired and battered body was overwhelmed by yet another infection. Sally was my hero. I went to her funeral and celebration of life, and saw for myself just how many people she touched and inspired during her short lifetime. And she continues to inspire me every day. And in July, the young son of another friend was also diagnosed with leukemia. The prayers begin again. And so I do what I can - raise funds for Pediatric Cancer Research via St. Baldrick's. Something must be done to develop treatments more appropriate for pediatric patients, so that we can reduce the trauma they themselves cause. Only 4% of current funding is earmarked toward pediatric cancer research. #ItsNotOK #MoreThanFour #SweetSallySunshine #BeLikeSally http://www.sweetsallysunshine.com/ https://teamnaaman.com/ Jay's friend might be your friend too. Nicole aka Babyrock is my daughter. Way back when she was still in college, she and another of my daughters and some of their friends were "ticket girls" for raffles at the TBDAHOT, if you have been with TBD long enough to remember! I met Matt Kabel at a tailgate in Buffalo (I believe) and saw him one year with Nicole at the NY City Bills Backers in Manhattan. Small world! Sadly, Sally's fight against Infant Mixed Lineage (MLL) ALL Leukemia is finished but not her disease. Your support and prayers are still appreciated. Naaman (Cheeky) is my grandson. He was diagnosed in July 2018 with PH-like ALL - Leukemia. He will turn two years old at the end of this month. Cheeky, will be undergoing intense and aggressive treatment for at least another 2 1/2 to 3 years. He is on FACEBOOK as "Team Naaman". Read Sweet Sally Sunshine's and Naaman's stories and the links Jay provided. Please help in any way that is best for you. God Bless. Rock Cheeky got an early birthday surprise from ONE Bills Drive and Billy Buffalo. Edited February 16, 2019 by rockpile spelling
JÂy RÛßeÒ Posted May 1, 2019 Author Posted May 1, 2019 Bump My event is this coming Sunday, and there's still time to donate! https://www.stbaldricks.org/participants/mypage/991167/2019 Any amount would be so appreciated! 1
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