rockpile Posted April 16, 2018 Author Posted April 16, 2018 The Walk is May 20th, the will accept donations for the walk after that date.
Mr Info Posted April 17, 2018 Posted April 17, 2018 (edited) Just made a donation to support your effort and hope a better treatment surfaces for you. I see that many small and large pharmaceutical companies have active programs for treatments and, hopefully, a cure. It is encouraging that many are in Phase III trials. Genentech's Ocrevus was just approved on March 28 for MS and PPMS. Perhaps that will be available for you. https://www.fda.gov/newsevents/newsroom/pressannouncements/ucm549325.htm Edited April 17, 2018 by Mr Info
mead107 Posted April 17, 2018 Posted April 17, 2018 On 4/16/2018 at 9:25 AM, rockpile said: The Walk is May 20th, the will accept donations for the walk after that date. I donated to Rrich 1
rockpile Posted April 18, 2018 Author Posted April 18, 2018 2 hours ago, mead107 said: I donated to Rrich Thank you!
rockpile Posted April 18, 2018 Author Posted April 18, 2018 7 hours ago, Mr Info said: Just made a donation to support your effort and hope a better treatment surfaces for you. I see that many small and large pharmaceutical companies have active programs for treatments and, hopefully, a cure. It is encouraging that many are in Phase III trials. Genentech's Ocrevus was just approved on March 28 for MS and PPMS. Perhaps that will be available for you. https://www.fda.gov/newsevents/newsroom/pressannouncements/ucm549325.htm Thank you! I appreciate your support. I am taking Gilenya right now, which is a daily pill. I have been on treatments like Ocrevus, which is an infusion (bag and IV). What is encouraging is it seems to help those with the progressive form of MS that can really hit you hard. I have the relapsing/remitting MS that comes and goes. My medication is pretty effective in stopping or slowing down relapses. I am kind of a guinea pig, since when I was first diagnosed they were just starting to have treatments to slow down MS. My treatments have been self injection, infusion, and now oral. Luckily prescription assistance programs pay for my drug for now. Annual costs would range from $65,000 to $96,000, I would have to stop treatment if asked to pay for it. SSDI plus my wife's income is enough to live on within our comfort zone (no complaints) , but prescription costs are beyond reason!
mead107 Posted April 18, 2018 Posted April 18, 2018 Glad this got pinned. Step up to the plate everyone. $ 10 from 500 members would do wonders.
boyst Posted April 21, 2018 Posted April 21, 2018 On 4/18/2018 at 2:10 PM, mead107 said: Glad this got pinned. Step up to the plate everyone. $ 10 from 500 members would do wonders. 1 dollar from 5,000 members would be even better!
rockpile Posted April 22, 2018 Author Posted April 22, 2018 UPDATE: As of today we have $515 from our sponsors. Thanks to all! Sponsors: JÂy RÛßeÒ Tom Benson Anonymous Jane G Bill Low-Bear Boyst62 Mr info T. Huber M. NanLoan Scoundrels: Jack If you choose to participate: Donations (tax deductible in 2018) can be made at my MS Society page:http://main.nationalmssociety.org/goto/FamilyRockpile On Facebook:https://www.facebook.com/groups/349924721875823/?ref=bookmarks When you get to the donation page, it has "suggested" amounts starting on the left at $35, but on the far right you can put in any amount. ANY amount is greatly appreciated and many $5 contributions add up to a LOT!
Just Jack Posted May 5, 2018 Posted May 5, 2018 On 4/21/2018 at 10:32 AM, Boyst62 said: 1 dollar from 5,000 members would be even better! or 50 cents from 10,000 members.
boyst Posted May 5, 2018 Posted May 5, 2018 2 minutes ago, Just Jack said: or 50 cents from 10,000 members. Or 100 fat chicks for $5 a piece.
Just Jack Posted May 5, 2018 Posted May 5, 2018 Just now, Boyst62 said: Or 100 fat chicks for $5 a piece. Or 50 students paying $10 to get GDIB's secret "Teachers that have sex with students" list.
rockpile Posted May 7, 2018 Author Posted May 7, 2018 30th Annual MS Walk in Rochester was today. Over 1,200 people walked in Genesee Valley Park and raised over $165,000. MS Walk in Rochester today! I will be walking on May 20th in Canandaigua for the same cause. UPDATE: As of today we have $615 from our sponsors. Thanks to all! Sponsors: JÂy RÛßeÒ Tom Benson Anonymous Jane G Bill Low-Bear Boyst62 Mr info T. Huber M. VanLoan dKanga Scoundrels: Jack If you choose to participate: Donations (tax deductible in 2018) can be made at my MS Society page:http://main.nationalmssociety.org/goto/FamilyRockpile On Facebook:https://www.facebook.com/groups/349924721875823/?ref=bookmarks
rockpile Posted May 7, 2018 Author Posted May 7, 2018 Walk MS® brings together a community of passionate people to connect and raise funds to change the world for everyone affected by multiple sclerosis. Walk MS takes place at over 400 locations with more than 300,000 people participating annually. We've been walking since 1988 and to date have raised have raised more than $1 billion to drive groundbreaking research, provide life-changing services and guarantee a supportive community for those who need it most. When you participate in Walk MS, you are helping create a world free of multiple sclerosis. Together, we become a powerful force. Together, we will end MS forever.
rockpile Posted May 10, 2018 Author Posted May 10, 2018 Wow! What a week! On Monday, sponsor total was $615. As of this morning, the total is $915. I am sure we can beat our $1,000 goal in the next ten days! I cannot adequately express both the gratitude and humility I have in response to your support! Thanks to all! Sponsors: JÂy RÛßeÒ Tom Benson Anonymous Jane G Bill Low-Bear Boyst62 Mr info T. Huber M. VanLoan dKanga Grace G.G. Kevin B.W. (TSW?) K and J Morgant Scoundrels: Jack If you choose to participate: Donations (tax deductible in 2018) can be made at my MS Society page:http://main.nationalmssociety.org/goto/FamilyRockpile On Facebook:https://www.facebook.com/groups/349924721875823/?ref=bookmarks $915.00 I Have Raised $1,000.00 My Goal (change) 10 Days Left Until Event
rockpile Posted May 17, 2018 Author Posted May 17, 2018 (edited) FOUR Days Left! We beat our $1,000 goal today, but are still asking for you to sponsor us! Current Total: $1,065 ! I cannot adequately express both the gratitude and humility I have in response to your support! Thanks to all! Sponsors: JÂy RÛßeÒ Tom Benson Anonymous Jane G Bill Low-Bear Boyst62 Mr info T. Huber M. VanLoan dKanga Grace G.G. Don DeCarlo Kevin B. Wynne K and J Morgante R. Narad The Marrowbacks Scoundrels: Jack If you choose to participate: Donations (tax deductible in 2018) can be made at my MS Society page:http://main.nationalmssociety.org/goto/FamilyRockpile On Facebook:https://www.facebook.com/groups/349924721875823/?ref=bookmarks Edited May 17, 2018 by rockpile add sponsors and edit list
MakeBuffaloGreatAgain Posted May 20, 2018 Posted May 20, 2018 Did this walk a few years in a row in Vegas in support of my Grandma... Good cause. Thoughts and prayers to everyone.
rockpile Posted May 21, 2018 Author Posted May 21, 2018 (edited) 14 hours ago, MakeBuffaloGreatAgain said: Did this walk a few years in a row in Vegas in support of my Grandma... Good cause. Thoughts and prayers to everyone. Thanks! I was diagnosed in 1994, but I am still walking! We have been walking about 15 years now. Usually we do it in Rochester, but this year walked in Canandaigua, NY for a change. Total sponsors in 2018 contributed $1,265 to help those with MS and find a cure. Since about 2003, we have raised over $20,000. 2018 Sponsors: JÂy RÛßeÒ Tom Benson Anonymous Jane G Bill Low-Bear Boyst62 Mr info T. Huber M. VanLoan dKanga Grace B. Don DeCarlo Kevin B. Wynne Ryder & Gia R. Narad The Marrowbacks GG HJ Guiles J Walker If I missed anyone, please contact me! Donations accepted for another month to this cause at my MS Society page:http://main.nationalmssociety.org/goto/FamilyRockpile On Facebook:https://www.facebook.com/groups/349924721875823/?ref=bookmarks ...and of course donations can be made anytime to the National MS Society in your area. THANK YOU TO MY TBD SPONSORS! ? Edited May 21, 2018 by rockpile adds and edits
rockpile Posted May 22, 2018 Author Posted May 22, 2018 Update: Counting personal and TEAM totals - there is a new total: Total sponsors in 2018 contributed $1,290 to help those with MS and find a cure. Since about 2003, we have raised over $20,000. THANK YOU TO MY TBD SPONSORS! ? 1
rockpile Posted June 3, 2018 Author Posted June 3, 2018 Thanks to Jack, the team total is over $1.300 as of today. Nice birthday gift for me, too! You are officially off the "scoundrels" list!
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