My prayers to you and your family. I know of your pain, in the last 2 years, I lost a daughter to a similar malady, a 19 day old nephew to a incompetent surgeons knife, and my brother-in-law(who was like my brother) to a tragic accident the day after christmas. We all have many crosses to bear, some larger at times. But we must carry on, and hold each other tight.
"And Jesus said: "Pick up your crosses, and follow me."