‘When that happened and I didn’t cry, it didn’t go over very well with my wife. I’ve never really gotten past it though. My son was born on my birthday, Valentine’s Day, and I already had this game plan written for him, and then he is diagnosed with this fatal disease when he is four months into his life, and all the things I dreamed about as a father and son were pretty much gone. It has resulted in a lot of charity work through my foundation.’